The Huntington’s Disease Society of America has books, pamphlets, and videos for purchase. Two not-to-miss newsletters you can sign up to receive for free are "Toward a Cure" and "The Marker". Their helpful website is http://www.hdsa.org.
The largest online site for new, rare, used and out-of-print books is http://www.abebooks.com, keyword: Huntington’s Disease.
Hospital Libraries
Many hospitals maintain medical libraries that are available to the general public and health care professionals for research. Guidance with internet searches may also be available.
Links for medical and research information:
http://www.medlineplus.gov
http://www.pubmed.gov
| Candler Hospital 5353 Reynolds St. 912-819-6000 Savannah, GA Librarian: Maxine Blair |
St. Joseph’s Hospital 11705 Mercy Blvd. Savannah, GA 912-819-4100 Librarian: Maxine Blair |
Memorial Health University Center 4700 Waters Savannah, GA 912-350-8000 Librarian: Jane Bridges |
Our Library
Videos:
Claudia’s Challenge
Living with HD: A Team Approach
Nanny’s Birthday: You’re Not Sick, You’ve Only Got HD
HD Exercise Group Level 2
HD Exercise Group Level 3 (These videos were designed to provide HD patients with the skills needed as the disease progresses)
Books and Periodicals:
Physician’s Guide to the Management of HD
Caring For Persons With Huntington’s Disease, by Edmond Chiu
Mapping Fate, by Alice Wexler
Understanding Behavior in Huntington’s Disease, by Jane Paulson
Informational Handouts:
Topics including basic HD information, genetic testing, nutrition, care giving, home health care, etc.
All content and photos are copyright © 2006-2007 LHDG Savannah, Georgia
