How did the support/education group, known as Lowcountry Huntington's Disease Group get started?

During the Fall of 2002, the wives of two distant cousins diagnosed with HD, began to meet for lunch occasionally to share their experiences and the wife of another HD cousin soon joined them. It wasn’t long before the idea of a group was born to provide support and education to others. From the very beginning, the small group had big ambitions. They wanted to provide opportunities for families affected by HD to get together, share experiences, socialize, and learn about resources in the community as well as progress being made in HD research. These women realized the need to emphasize education for themselves, the community, and local health care professionals.

The first official meeting was held in May of 2003 with fifteen people in attendance at Candler Hospital in Savannah, Georgia. The guest facilitator was Taylor Butler, LCSW, from Emory University’s HDSA Center of Excellence and Wesley Woods Health Center in Atlanta, Georgia.